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A Healthy Blog

Massachusetts health care – wonky with a dose of reality

June 5, 2016

The debate over authorizing “dental hygiene practitioners,” to improve access to good oral health, just heated up a lot more this week.

Background: Dental Hygiene Practitioners (DHPs) are dental hygienists who – after completing additional training – are able to deliver basic but critically necessary care to underserved populations in the state. DHPs work under the supervision of a dentist, and can bring care directly to people in schools, nursing homes, and other community settings. Access to oral health care is a particularly difficult for older adults, for people with disabilities, for children with MassHealth coverage, and for rural communities. Licensing this new oral health care clinician, as is done successfully in several other states, would expand access to essential health care for these underserved people.

With our strong support, the state Senate unanimously voted to include a provision creating DHPs in its version of the budget. But there’s no corresponding provision in the House budget, so the issue is up to the joint House-Senate budget conference committee which begins meeting this week.

However, the Mass Dental Society has come out strongly against the proposal, spending many tens of thousands of dollars to convince the public to oppose the provision. 

Meanwhile, objective experts are weighing in strongly in favor of the proposal.

Two weeks ago, Dr. Don Berwick, former president of the Institute for Health Care Improvement, an evidence-based center devoted to quality care, and a former national administrator of Medicare and Medicaid, wrote a detailed review in the Globe of studies supporting DHPs. He cited over 1,100 studies which found that DHP care is certainly comparable, and often superior, to care from a dentist. Berwick, who also sits on the state's Health Policy Commission, concluded,

“Proper dental care is as much a human right and as smart an investment as is proper medical care. By passing the Dental Health Practitioner legislation, Massachusetts now has a chance to add access to dental health to its list of proud commitments.”

This was amplified at a meeting of the state’s Health Policy Commission on Wednesday. The HPC revisited key findings on emergency department visits for preventable oral health conditions, noting that almost half of all preventable ED visits for oral health were paid for by MassHealth, while just 35% of all licensed dentists in Massachusetts accept MassHealth. In light of these glaring numbers, the HPC pointed to licensing DHPs as proven solution:

Health Policy Commission Support for Dental Hygiene Practitioners

 

Commissioners enthusiastically supported the proposal. Commissioner David Cutler stated that he was “convinced” of the model and Commissioner Berwick reiterated that establishing mid-level dental providers is a “slam dunk” policy that expands access, potentially decreases costs, and also serves as an opportunity for economic growth by providing a new health care career path. Although Commissioner Carole Allen admitted she was initially cautious as some providers have indicated concerns about establishing a “2-tiered system of care,” after further studying the significant amount of evidence affirming the quality of care delivered by mid-levels and their potential for expanding dental access, she is now a firm supporter of the model, she said.

Health Care For All rejects the calls for more study and delay.  The evidence is overwhelming that DHPs would provide high-quality dental care to people who need it the most. We urge people to contact their state representative and ask them to contact the House members of the budget conference in support of this “slam-dunk” policy.

                                                                      -- Kelly Vitzthum

 

May 26, 2016

CMHCDarcy is a mother of two children with medical and mental health challenges, the Director of Family Connections at The Walker School, and advocate for “wraparound” services. Wraparound services are an intensive and holistic set of services that help individuals with complex needs stay in their communities. 

Below is an interview with Darcy on why wraparound services are so important for children’s mental health.

What drove you to become an advocate for children’s mental health services?

  • My oldest daughter started to struggle with mental health issues when she was around 12 years old and we began the long journey through hospitalizations and residential placements.  There is a lot of stigma associated with mental health – and I found that the more I fought against the stigma by talking to friends and family members about it, the more I realized that everyone is connected to someone in their family or a friend that also struggles with mental health challenges.  I wanted to make sure other families didn’t feel like they were going through this alone, so I began to help other families by telling my story and giving them information about resources and how to access services that would help their children.
  • Most recently my 13 year old daughter was hospitalized and has been struggling with mental health issues.  Both my girls have private insurance and MassHealth as a secondary insurance.  And while we do have access to Children’s Behavioral Health Initiative (CBHI) services, it is still a struggle to be able to get the appropriate services they need.  We had to change our private insurance plan to be able to access certain services because the agency/hospital took MassHealth but not our private insurance.  Seeing families not able to access great services because their private insurance is a barrier - it's just crazy! Families who pay for commercial insurance should not need MassHealth in order to get the services their child needs. The Commonwealth is currently paying for services that could, and should be covered by children’s commercial insurance plans and these services ultimately will be more cost effective than out-of-home placements.

What types of services were your children unable to access on commercial insurance?

  • We were unable to get in-home therapy, therapeutic mentoring, and effective care coordination for the girls. I have run into a lot of barriers for my oldest daughter because of private insurance issues.  For example, we have been looking for an outpatient clinician that does outreach (in the home) sessions because my daughter has trouble accessing traditional outpatient therapy.  
  • The issue is that the agencies that do outreach therapy do not have Masters level clinicians, because we have a commercial insurance, the clinician has to meet the requirements of the private insurer and then MassHealth.  
  • We are also running into an issue where we would like to get my 20 year old daughter In Home Therapy through CBHI – but because she lives on her own, the CBHI providers are saying she does not qualify because she does not live with her “family”.  She is a household of 1, and is her own family. CBHI is designed for "family" therapy, thus living on your own means you no longer quality.  Because we have advocated and attained the goal all parents want for their children (living on their own) – she is being penalized and cannot access a CBHI service. 

How has access to MassHealth’s wrap around services improved your daughter’s care?

  • My 13 year old daughter is currently accessing in home therapy through CBHI.  She does not do well in a traditional outpatient therapy model – so having clinicians come to our home is making it so she can get the therapy she needs.

What have been the financial and emotional impacts of navigating the insurance markets on you and your family as well as your daughters?

  • Private insurance can get expensive when you add in the premiums as well as the co-pays.  The real problem happens when a provider does not take your insurance, and the family then has to pay out of pocket for every visit. 

How would you advocate to begin to fix the issues? 

  • To begin with, CBHI services should be available to all Massachusetts families through MassHealth and private insurance.  I would also want to take a look at CBHI regulations and advocate for some changes for transitional-aged youth.

As a mental health professional: can you explain why these wraparound/community based services are so critical for young people? 

  • There are NO services out there that compare.  Some providers do offer limited in-home, community based services – but these families typically have to pay out of pocket.  How can we help children and families when there is no parity?  If you do not know how to access MassHealth, or your income is such that paying the premium for MassHealth is too high – then your child and family are missing out on valuable time in their lives to gain coping skills to overcome challenges.

What advice would you give to other families on commercial insurance struggling to access to mental and behavioral health services for their children?

May 25, 2016

Oral Health is overall healthIn a stunning 39-0 unanimous roll call vote, the State Senate today voted to add Senate Majority Leader Harriette Chandler's amendment authorizing a new type of dental professional to serve our most vulnerable populations.

The amendment would create a new midlevel dental provider, the Dental Hygiene Practitioner (DHP). DHPs are dental hygienists who – after completing additional training – are able to deliver basic but critically necessary care to underserved populations in the state. DHPs will work under the general supervision of a dentist, using telehealth technology to share X-rays and patient records with the dentist and consult on complicated cases.This will allow DHPs to bring care directly to people in schools, nursing homes, and other community settings. DHPs will deliver critical dental services like filling cavities, placing temporary crowns, and extracting loose teeth.

In 2014, just 35% of dentists treated a MassHealth patient and only 26% billed at least $10,000 to the program. Furthermore, Massachusetts has 62 federally designated dentist shortage areas including 69 cities/towns with no dentist at all; an estimated 244,000 people in those areas are not able to have their dental needs met.Despite recent progress on health care, many residents in Massachusetts struggle to access dental care, and a person’s ability to receive adequate dental care is largely determined by age, race, income, insurance status, and geography. If you are a senior living in the Berkshires or a child on MassHealth in South Boston, the reality is the same: it may be hard to get adequate dental care.

HCFA's Executive Director, Amy Whitcomb Slemmer, praised passage of the provision:

"As we envision a more patient-centered health care system that integrates oral health, we must embrace alternative strategies that make it easier and more affordable for children and families to access the dental care they need. Passage of this provision is a crucial step forward as it will expand the dental team and give dentists the ability to bring care directly to patients in the community."

Similarly, yesterday the Boston Globe published an op-ed by Dr. Donald Berwick that summed up all the reasons to support creation of DHPs:

Proper dental care is as much a human right and as smart an investment as is proper medical care. By passing the Dental Health Practitioner legislation, Massachusetts now has a chance to add access to dental health to its list of proud commitments.  

This was brought out in detail by Senator Chandler in today's Senate debate:

All the problems one gets in oral health can end up in an emergency room and can be life threatening, deaths can be caused as a result. I know we don't always think of it that way.... This will bring good oral health to literally thousands of people who do not. There are so many people in nursing homes who took care of their teeth for years and now there are no dentists who will go there. These people  [DHPs] will go to nursing homes, they will go into school and other places dentists just don't go into. The fact is that we have studies that show that it costs between 4 and 9 times more to have your treatment in an emergency room than it does with a hygienist or dentist.

The provision's fate will now be up to a House-Senate conference committee, which will meet during June to hammer out a final budget. There is no equivalent provision in the House version of the budget. The strong vote today sends an important message to the conference that this is a top Senate priority.

                     -- Brian Rosman

May 25, 2016

Good news!  Last night (Tuesday May 24), the State Senate approved an amendment to delay planned eligibility cuts in the Health Safety Net program. The amendment was a top priority of HCFA and the ACT!! Coalition (see this ACT!! fact sheet for more information).

The Health Safety Net (HSN) reimburses hospitals and community health centers for providing care to low-income uninsured and underinsured Massachusetts residents. The Baker administartion recently approved regulations that would cut eligibility for the program by :

  • imposing substantial deductibles on individuals earning between 150-200% of the federal poverty level ($17,000 - 23,000 per year for an individual);
  • reducing the income for overall program eligibility from 400% FPL to 300% FPL; and
  • shortening the time period for which HSN will pay for services incurred.

The amendment passed in the Senate last night was sponsored by Senator Jason Lewis of Winchester, who spoke in favor of his proposal. The amendment would postpone the planned cuts until April 1 of next year. The amendment did not include the additional $15 million in state funds for the program also supported by HCFA and ACT!!.

The provision still needs to be approved by the House-Senate budget conference committee, and be approved by the Governor, in order to become law. The House did not include any language on the HSN cuts in its version of the state budget.

Because the regulations are scheduled to take effect on June 1, and the budget will not take effect until July 1, we will be urging the state to hold off on implementing the cuts until after the conference committee concludes.

We thanks everyone who contacted their Senator on this, and will continue to work to support the HSN program.

                                  --- Brian Rosman

May 23, 2016

Massachusetts Senate chamberThe Massachusetts State Senate will vote on its version of the state budget starting on Tuesday, May 24. Massachusetts uses a fiscal year that starts on July 1, so this budget starts in just a few weeks. The budget allocates funds for state programs, such as MassHealth and the Department of Public Health, and sets state policies in many areas. You can read a detailed summary of the budget from the Mass Budget and Policy Center here.

Senators have proposed over 1100 amendments to the budget which will be considred over the course of the debate, which should last 3 or more days. A number of these would strengthen the state’s health care system, and are supported by HCFA. A list of these amendment is below. Please call or email your State Senator today, in support of these amendments (go to WhereDoIVoteMA.com to look up your Senator). Your voice makes a real difference. We heard from a state legislator last week that just a few calls into his office can change his priorities.

Here's the list of HCFA priority amendments:

 

Protect Health Safety Net Eligibility & Funding

The Health Safety Net (HSN) reimburses hospitals and community health centers for providing care to low-income uninsured and underinsured Massachusetts residents. Recent eligibility cuts and funding reductions impose barriers to care for individuals without access to affordable health coverage. You can download a fact sheet on the program cuts and the amendment for more information.

  • Support Sen. Lewis’s amendment (#369; EHS category) to protect Health Safety Net eligibility and continue investing $30 million in the program, ensuring continued access to care for low-income uninsured and underinsured residents.

Ensure Access to Oral Health Services for People with Disabilities

Individuals living with disabilities have particular oral health needs, including adaptive facilities and equipment, as well as providers with specialized training. See this fact sheet on the issue.

  • Support Sen. Lovely’s amendment (#474; EHS category) to allocate an additional $500,000 for the dental program for individuals with intellectual and developmental disabilities (line item 4512-0500). 

Expand Access to Dental Care

One in ten Massachusetts residents does not have access to a regular dental provider. Further, only 35% of dental providers accept MassHealth, making it even harder for vulnerable populations to access basic dental care. Dental care must be more easily accessible. More information is available on this fact sheet.

  • Support Sen. Chandler’s amendment (#479; EHS category) to establish a new mid-level dental provider, a Dental Hygiene Practitioner, which would expand access to basic dental services for the most underserved parts of the state.

Ensure Homeless Families’ Access to Nutritious Meals

Families who live in hotels and motels often don’t have a way to keep food fresh, and can’t cook or store nutritious meals. Families without access to nutritious meals are affected in many ways, like children being unable to focus in classes, and parents going hungry to feed their children. This also leads to higher health care costs. More details are on this fact sheet.

  • Support Sen. Montigny’s amendment (#14; Other Category) to create a special commission to study the need for and methods to provide nutritious meals to families in temporary housing in hotels and motels.

Protect Substance Exposed Newborns and those with Neonatal Abstinence Syndrome

Preventing long-term side effects in newborns who have been exposed to harmful chemicals is an important aspect of children’s overall health and wellbeing. An interagency taskforce can gather information, and establish plans to improve care for newborns who have been exposed to harmful substances which compromise their health. See this fact sheet for more information

  • Support Sen. Flanagan’s amendment (#500; EHS category) to establish an interagency taskforce focused on the health of vulnerable newborns.

Invest in Oral Health

Charged with preventing dental disease and improving oral health in all Massachusetts communities, the Office of Oral Health at the Department of Public Health (DPH) is an essential component of our state’s public health infrastructure. More information is available on this fact sheet.

May 17, 2016

The Massachusetts State Senate released its proposed state budget on May 17. The budget's theme is "Investing for a resilient Commonwealth," and there are a number of bold, creative initiatives, particularly around children's programs,  In response, HCFA released the statement below. The budget debate begins in the Senate on Tuesday, May 24. HCFA will be working with Senators on a number of amendments to strengthen health care for Massachusetts.

 

STATEMENT FROM HEALTH CARE FOR ALL'S EXECUTIVE DIRECTOR AMY WHITCOMB SLEMMER REGARDING THE 
SENATE FY2017 BUDGET PROPOSAL
 
BOSTON - Statement from Health Care For All's Executive Director Amy Whitcomb Slemmer Regarding the Senate FY2017 Budget Proposal:
 
Health Care For All appreciates the work of Senate Ways and Means Chair Karen Spilka and Senate President Stan Rosenberg on proposing a thoughtful budget that focuses on directing funding to key programs for our communities.
 
We are pleased that the Senate's proposed budget includes a directive for MassHealth to work with other human service agencies to design one common application for all the benefits people may qualify for, including health care, food assistance, housing and child care. Streamlining access to multiple social services has the potential to improve the population's overall health and lower the cost of health care for the state.
 
We also applaud the Senate for funding the state's program that educates doctors on cost-effective use of prescription drugs. The so-called "academic detailing" program counters the aggressive marketing efforts by the drug industry to get doctors to recommend the most expensive, high-profit drugs, even when more cost-effective alternatives work just as well.
 
HCFA appreciates the inclusion of funding for the ForsythKids program, which offers school-based preventive dental care. This program works with schools and community partners to make it easy for children and families to access high quality dental care, which is critically important to their overall health and well-being.
 
The Senate budget also allocates full funding for the Early Intervention (EI) program, which provides family-centered services to help children who qualify develop the skills they need to grow into happy and healthy community members. The long-term payoff of the EI program for better health and economic sufficiency has been shown again and again, and we're pleased to see the Senate invest in this initiative.
 
However, we were disappointed to learn that the fiscal plan does not reverse cuts announced by the Baker Administration to eligibility for the Health Safety Net program. This program provides critical access to care at hospitals and community health centers for people ineligible for any other health care program. We urge the Senate to protect this long-standing linchpin of health care in Massachusetts for the most vulnerable members of our community.
 
We also are displeased by the gap between the appropriations level and the need for funding for the Tufts Dental Facilities. This program provides outstanding oral health care at seven locations throughout the state to disabled people who rely on the special expertise and facilities of the program. We hope the Senate can increase the allocation to the program so it can continue to serve all who need its care.
 
We appreciate the effort and work that has gone into this fiscal proposal and we look forward to work with the members of the senate towards achieving a balanced budget that takes steps to improve the health and well-being of all residents of the Commonwealth.
May 17, 2016

What is Parity? And what does it mean for kids?

Children's Mental Health CampaignYou may have heard of Mental Health Parity, but what exactly does it mean?  When talking about parity in mental health care, we mean fairness with regard to health insurance coverage. The goal is that with fair insurance coverage of mental health and addiction services, there will be better access to treatment which will lead to improved health. The Mental Health Parity and Addiction Equity Act of 2008 (MHPAEA or the Federal Parity Law) requires most health plans to cover the mental health and substance use disorder benefits they offer in a comparable way to physical health benefits the plans offer.  MHPAEA does not require health plans to provide mental health or substance use disorder benefits, but if a plan does offer these benefits, it must do so in a fair way when compared to physical health benefits. Some health plans are exempt from the Federal Parity Law, including Medicare and TriCare (military health benefits).

For the 17.1 million children with behavior health needs living in the United States, Mental Health Parity is critical to ensuring kids receive the treatment they need. Limited and inequitable coverage of Mental Health services is not only a financial burden for families struggling to pay for appropriate services for their children, but it also contributes to the pervasive stigma that surrounds mental health conditions.

The Rules

The Federal Government has issued regulations which help explain how health plans must comply with the Federal Parity Law. There is one rule for private health insurance plans (such as plans offered by private employers to their employees) and another rule for the public health insurance programs Medicaid and the Children's Health Insurance Program (CHIP).  In Massachusetts, Medicaid and CHIP plans are both referred to as MassHealth. The Federal Parity Law does not apply to all  MassHealth members, but only to those in MassHealth Managed Care Organizations (MCOs), the CarePlus plan and MassHealth Family Assistance (CHIP plan). One important aspect relating to children is that for CHIP Plans, if the CHIP plan offers Early and Periodic Screening, Diagnosis and Treatment (EPSDT), the plan will be deemed in compliance the Parity Law.  While there are separate rules for private and public health plans, there is a lot of overlap between the rules. If you are interested in learning more about the details of the law, click here to read more.

The Children’s Mental Health Campaign’s goal is to help improve Massachusetts mental health care system for children.  Health Law Advocates is assisting in this effort by ensuring that Parity Law gets enforced.  If you live or work in Massachusetts and think you or someone you know has experienced a mental health parity violation or your insurance plan has denied you coverage of mental health or substance use disorder services, please contact HLA, at (617) 338- 5241 or (888) 211-6168 (toll-free number).  You can also visit the HLA's website at www.healthlawadvocates.org/.   To learn more about HLA's Children’s Mental Health Access Project, which includes our Juvenile Court Advocacy Project, click here.

 

May 6, 2016

Closing the SNAP Gap is a top priority for the Healthy Food, Healthy Homes, Healthy Children (HHH) Coalition and Health Care For All and we were thrilled to see Children’s HealthWatch’s letter to the editor in the Boston Globe on the importance a combined MassHealth/Supplemental Nutrition Assistance Program (SNAP) application.

What is the SNAP Gap? The difference between 1.356 million MassHealth enrollees who are likely SNAP eligible and the 785,000 MassHealth enrollees actually receiving SNAP.1 Or, to put it another way: Roughly 570,000 MassHealth enrollees who are likely eligible for, but not receiving SNAP benefits.

 

Common app needed for MassHealth and SNAP

MAY 06, 2016

We are glad to see the Globe acknowledge the need to better coordinate health care (“A necessary prescription for MassHealth,” April 29). Hopefully, accountable care will lead to both healthier patients and cost savings. We recommend an additional prescription.

Permitting low income families to file for both Mass-Health and the federally-funded nutrition (SNAP) benefits simultaneously is key. A common application would reduce administrative red tape for families and improve the health of young children. Children’s HealthWatch research shows that young children enrolled in MassHealth who received SNAP were more likely to be food-secure and in better health than children eligible for, but not receiving, SNAP.

Many families eligible for one public assistance benefit are often eligible for others as well. A comparison of SNAP and MassHealth data by the Mass Law Reform Institute suggests a “SNAP Gap” of roughly 600,000 very low-income MassHealth recipients eligible for SNAP but not enrolled. This is due, in part, to difficulties navigating multiple government agencies. Families often submit duplicate documentation to access a disjointed patchwork of programs. Massachusetts should seize the opportunity and offer families a common application portal.

Dr. Megan Sandel

Richard Sheward

Children’s HealthWatch, Boston

 

Massachusetts is a national leader in health services and access to care, but staying well requires more than health insurance. SNAP significantly decreases families’ food insecurity which is an established health hazard that can lead to poor health and hoptilizations.2 Research shows that SNAP improves health outcomes and reduces health costs.3

SNAP is a 100% federally funded benefit. Over 500,000 Massachusetts residents are eligible for but not receiving SNAP. MA is leaving federal dollars on the table that could be feeding low income Massachusetts residents and improving their health.

Under the leadership of Representative Livingstone, and advocacy from the Massachusetts Law Reform Institute and HHH Coalition, the House budget included   an amendment to study the feasibility of creating this combined application. We will work through the Senate budget process to further push this important effort forward.

 

1 October 2015: EOHHS reported 1.8 million Masshealth enrollees, DTA reported 785K SNAP enrollees. Of the 1.8M Masshealth enrollees, 200,000 were “temporarily enrolled.”  MLRI evaluated Masshealth and SNAP participation data for October 2015. MLRI determined the “likely SNAP eligible” by counting Masshealth enrollees under 200% FPL in Masshealth Standard, CarePlus, and Commonhealth, and excluding temporarily enrolled, long term care and immigrant ineligibles.

2 Children’s Health Watch, The SNAP Vaccine: Boosting Children’s Health, February 2012, pp.1-2

3 Gunderson, Craig and Ziliak, James P., Food Insecurity and Health Outcomes, Health Affairs, 34, no. 11 (2015), pp.1830-9.

May 4, 2016

Children's Mental Health CampaignMay is Mental Health Awareness month and to celebrate, the HCFA blog in partnership with the Children’s Mental Health Campaign will be posting a series of blogs about children’s mental health throughout the month to raise awareness. 

The Children’s Mental Health Campaign (CMHC) is a coalition of families, advocates, health care providers, educators, and consumers from across Massachusetts dedicated to comprehensive reform of the children’s mental health system. The Coalition is led by five partner organizations - the Massachusetts Society for the Prevention of Cruelty to ChildrenBoston Children’s Hospital, the Parent/Professional Advocacy League, Health Care For All, and Health Law Advocates - and includes more than 140 supporting organizations across Massachusetts. 

The Campaign has received a grant from the C.F. Adams Charitable Trust for a 3-year project whose goal is to develop a better understanding of the factors which contribute to pediatric psychiatric "boarding" and ultimately, to successfully advocate for solutions. Boarding occurs when a person in the Emergency Department (ED) requires inpatient care, but there are no appropriate psychiatric placements available, leading to longer stays in hospital EDs or on non-psychiatric medical units. To learn more about the campaign’s boarding project and advocacy efforts in general, visit www.childrensmentalhealthcampaign.org or follow us on Facebook and Twitter.

Below is Linette's family’s experience with boarding:

Creating a Supportive Village for Families in Crisis

By Linette Murphy

Linette Murphy connected with PPAL (Parent-Professional Advocacy League – a leading voice in Massachusetts for children’s mental health) several years ago when her daughter had been waiting weeks for a hospital bed. She has been involved with PPAL ever since and is also a voice for Children's Mental Health Week as she runs a Facebook group called "Where's Your Ribbon?"

Having a daughter with a significant mental health diagnosis has deeply affected our family. Our daughter, and by extension, our entire family endured the traumatizing experience of being medically boarded in an emergency room for 21 days while waiting for a pediatric psychiatric placement. 

“Boarding” occurs when a patient goes to the emergency department in a mental health crisis and waits in the ED for more than 12 hours for appropriate care, in many cases for a placement in an inpatient psychiatric unit.
Our daughter was turned down by every inpatient psychiatric hospital in New England, and even some as far away as Virginia, time and again for 3 weeks.  While this was an incredibly frustrating ordeal, I have chosen to remain positive. In many ways, my family was blessed throughout this traumatic experience of childhood psychiatric boarding.  During the days, and weeks of waiting, I turned my anger at the broken system into social media posts where I wrote about our experience.  It was with my online community that I began educating others about the issues within the mental health systems as well as built compassion amongst my friends and family.  I refused to feed into the stigma, to hide, or to ashamed of what my daughter was facing.  I chose to be open and honest and have the strength to have real conversations about the issues my family was dealing with. I knew that by giving voice to our struggle, we were breaking down stigma and barriers for other families.
 
I was fortunate to have family support and relied on them to try to maintain a sense of normalcy for my other child. My community was also incredibly supportive as they set up a Meal Train, brought meals to the house every other day for over a month and put together gifts to bring to the hospital. Other moms who had experience with boarding with their own children visited and brought coffee, and sat with my daughter long enough for me to take a shower. One insisted I take a break from the stress and took me out for lunch.  When these parents had to return home and take care of their own families, yet more friends took turns taking care of my other child, making sure he got to school and his extracurricular activities. They had slumber parties, even on school nights, with their own children so that my son was taken care of while I lived in the hospital with my daughter. My support system helped me to keep going when I no longer had the strength to fight the system anymore.

May 3, 2016

For The People 2016

Today's Boston Globe highlighted the new look to HCFA's signature fundraising event, For The People, tonight, Tuesday, May 3 at 5:30 at 60 State Street, Boston.

Tickets are still available at FTP2016.org. Please join community members, graphic artists and thought leaders to create visions of Patient Centered Care. Celebrate Health Care For All and share your story. HCFA's annual fundraising event will include opportunities for networking while enjoying cocktails and appetizers.

Here's the Globe's take:

A conversation fit for a gala

Another gala bites the dust.

Like many other nonprofits, Boston-based Health Care for All has traditionally held a fund-raising gala each spring, replete with mass-produced food and glossy programs.

But now, fed up with the high cost and high tedium of those events, it’s joining the un-gala movement.

Tuesday night’s Health Care for All spring fund-raiser will have no sit-down dinner, no auction, no printed programs. The crowd will be smaller — 250 to 300 people, versus 550 — and only drinks and hors d’oeuvres will be served. Tickets will be cheaper, too, at $150 a seat (down from $250).

And here’s the big twist: Attendees will be encouraged to participate in small-group discussions about health care issues. They’ll be “guided conversations” led by bigwigs.

“Conversation starters” and “discussion moderators” will include notables such as Community Catalyst COO Jacquie Anderson, Blue Cross Blue Shield of Massachusetts CEO Andrew Dreyfus, Iora Health CEO Rushika Fernandopulle, Health Policy Commission executive director David Seltz, and Dr. Joel Weissman of Brigham and Women’s Hospital.

“No one will be waiting for a meal to be served or enduring a two-hour stage program,” says executive director Amy Whitcomb Slemmer.

That’s music to gala community ears.

SACHA PFEIFFER

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